Treatment Detail on Seaboxes Blog

Brutal ChemoImmunotherapy

Sun, 05 Apr 2020 14:23:00 +0000

Violet’s summary of chemoimmunotherapy is so very appropriate “my last few treatments have been a luxury compared to this” and there’s so many emotions and so much happens it’s hard to capture it all. Hopefully this post and photos will give some perspective of the reality.

The Facts / 10,000ft View

At a high level we’re following ANBL1821 protocol. However, Violet is excluded from the trial because it’s not her first relapse, which is ok because it gives us some flexibility (ie. push out cycles from to every 3 weeks to every 4 weeks).

5 months down… 8 to go

Thu, 14 Apr 2016 15:05:00 +0000

As we say goodbye to the induction phase we now have more clarity on what lies ahead for Violet in the consolidation and maintenance phases. This is a marathon, the finish line is not in sight yet, but we continue to run!

Last week Violet went through re-staging to determine treatment effectiveness and any damage treatment may have caused. It’s only 10 tests over 4 days (GFR, MRI, MIBG, CT, Audiology, Catecholamine, Haematology, Bone Marrow Aspirate, Echo and ECG).

The Treatment Plan

Sun, 07 Feb 2016 10:01:00 +0000

It’s hard to plan for something that has so many variables along the way, but I’ve tried to create my view of Violets Treatment in a short video, you can watch it on YouTube Part 1 and Part 2.