Emotions on Seaboxes Blog

She went to hospital with hair on her head.

Wed, 27 Nov 2019 12:21:00 +0000

Bony growth has stopped. Yay.
But disease has progressed in her marrow. No! Not again!!
She’s quite unwell. When do you want to start? Tomorrow?
Premeds. Long lasting antiemetics. Diuretics.
Drip, drip, drip. Hyper hydration. Weigh the output.
Familiar friendly faces, in a way we’re home again, but not where we want to be.
Ahh, that wasn’t as bad as it could be.

Checkup time, 39 degrees, needing packed cells and platelets. What? That’s not supposed to be.
A simple temperature and a little sniffle. Not so bad.
Neutrophils less than 0.01. Sigh.
Neutropenia and a temperature. Not so good.
Drip, drip, drip. IV hydration. Antibiotics.

The most important personal trait

Sat, 19 Nov 2016 07:39:00 +0000

A trait that I highly rate is humility.

We live in a “look at me” and “look at what I have” society where I think humility is lost.

My take on the word is, someone who is humble, no matter what status you have, or where you are, you have time to listen stand up for and help others. The dictionary has a slightly different take on it..

I don't know what to say

Fri, 18 Nov 2016 20:50:00 +0000

A couple of colleagues pulled me aside at different times over the last few weeks and said something similar to “I really feel for you, I’m sorry I haven’t said anything until now, but I didn’t know what to say”.

To tell you the truth, it wasn’t until recently that I thought about the way I would have reacted if the roles were reversed before Violet got cancer, and it would have been very similar.

I see you friend...

Tue, 20 Sep 2016 21:17:00 +0000

I see you friend… Swimming with kids… My child has a central line, so showering or swimming is not possible.

I see you friend… On holidays… My holidays have been all used up, filled with sleepless nights caring for my child in hospital. My last holiday was before she was diagnosed, wondering what was wrong, dealing with her whinging.

I see you friend… On a road trip / flight hours away from home… My Child is only allowed to be within an hour of the hospital