Bony growth has stopped. Yay.But disease has progressed in her marrow. No! Not again!!She’s quite unwell. When do you want to start? Tomorrow?Premeds. Long lasting antiemetics. Diuretics.Drip, drip, drip. Hyper hydration. Weigh the output.Familiar...

In a few days Violet starts the 19th cycle of chemo in her relapse protocol. The duration of relapse treatment is now similar to frontline treatment (circa 500 days). Although frontline treatment was more intense with side effects and inpatient ...

There’s a couple of prayers I say each day. They are simple for a few reasons: 1) So I can remember them when I’m tired and my brain is fried 2) So they kids can remember them They maybe simple, but there’s depth to them. For grace: Lord God I t...

Hopefully you will find enough information about how to set images in your blog here. This is an example of a post which includes a feature image specified in the front matter of the post. The feature image spans the full-width of the page, and i...

Chemo Cycle 7 done, only 10 to go, maybe… Last week we found out a little more about what’s next. Before I explain that, I’ll point out Neuroblastoma is complex, this article describes it well: Neuroblastoma is a spectrum of diseases with a wide r...

One of the things people said earlier this year was “I don’t know how you’ve done it”.  To tell you the truth, neither do I.  If I think about it, if we didn’t, who would? The reality is we were in survival mode. I started these posts around the ...