Over the last few months of being at hospital I’ve created a list of things that indicate I’ve got a girl with cancer:
- Vomit bags decorate the house
- You can talk the medication lingo Ondanse, Max, Dex, Loraz, Oxy, Lasix, Cyclo, Vinc, Dox, Cisplat …
- Don’t go to the beach or swimming as you know the central line can’t get wet
- A ‘day pack’ now includes a medications you know the ED don’t regularly carry
- You know your childs’ name, date of birth and allergy status
- It’s not uncommon or uncomfortable to have conversations about wee poo and vomit (much like when you have a baby)
- You know how to be a patient patient, you’ve jumped the queue before when things were serious, so you know why there are people ahead of you.
- Much patience and flexibility is required to get your child to do what you want (choose your battles, look for distraction/rewards, give limited choice)
- You know your childs’ name, date of birth and allergy status
- You know your childs hospital ID(UR) number
- You not only know all her stuffed toys names, but their attitudes
- Know that sometimes it’s easier to hook up NG feeding than have the one hour I’m hungry but I don’t know what I want conversation
- Have a hospital day bag always half packed ready to go
- Have a check list of the things not to forget for a hospital day trip
- You know your childs’ name, date of birth and allergy status
- Know that the car park full sign means you’ve still got 90% chance of finding a park (even if it takes 15 minutes to find it)
- Drink sensibly and keep under the limit, in case you have to drive back to hospital
- Know what is like to sit in the back seat of your car
- Can scan a room full of kids, pick out the one with a runny nose and divert your child from going anywhere near them
- Know that it takes at lest 2 hospital ‘towels’ to dry yourself
- Wash your hands before, during and after eating
- You have a three vomit bags in site at all times
- Stickers, the prize box and playdoh are currency
- Know the smell of an antibiotic wee
- Eat smelly food outside the room.. Unless you don’t mind catching vomit while eating.
- Don’t eat spicy food, just in case the after effects cause …vomiting
- Are skilled at the art of waking from a deep sleep, jumping out of bed and catching vomit
- Think you’re good at ‘biting your tongue’ when you’re tired and cranky and have an opinion on return everything
- You know that you can’t play Happy Chef in the iPad when she’s nauseous
- You know the difference between a cough and a the start of a vomit … ahh.. No, no you can’t
- Paper towel is the official note paper of nurses
- You can cook bacon and eggs on an underpowered sandwich toaster without fire alarms going off
- Blend 43 tastes ok if it’s double shot with two sugars and you really really, really need to be caffeinated
- Have no trouble discussing a bowel motions and what a poonami and overflow is with the doctors
- Can flick a vomit bad open on one movement of the wrist
- Just like camping… Use a cup if you forgot the bowl; a spoon makes an ok fork if you can’t find one
- As with everywhere.. Build a relationship with the receptionist and cleaner, they are valuable people to know
This is the start of my #HospitalHack series of posts, over the coming weeks/months I hope to share how I’ve made our hospital admissions a little more bearable.